txheem
Cov leeg nqaij dystrophies - Cov chaw txaus siab thiab peb tus kws kho mob lub tswv yim
Xav paub ntau ntxiv txog muscular dystrophiess, Passeportsanté.net muaj kev xaiv ntawm cov koom haum thiab tsoomfwv qhov chaw. Koj yuav nrhiav tau nyob rau ntawd Lus Qhia ntxiv thiab tiv tauj cov zej zog lossis pab pawg sib txhawb tso cai rau koj kom kawm paub ntau ntxiv txog tus kabmob.
landmarks
Fabkis
Fabkis Association tiv thaiv Myopathies (AFM)
Lub koom haum tsim nyob rau xyoo 1958 los ntawm cov neeg mob thiab cov txheeb ze ntawm cov neeg mob, nrog lub hom phiaj ntawm kev kho cov kab mob neuromuscular thiab txo cov kev puas tsuaj ntawm cov neeg cuam tshuam.
www.afm-telethon.fr
ORPHANET
Tus kab mob tsis tshua muaj portal
www.menyuam ntsuag.Fr/
Canada
Muscular Dystrophy Canada
Lub koom haum uas nws lub hom phiaj yog txhawm rau tshawb fawb txog cov kab mob neuromuscular thiab txhawb nqa cov neeg mob thiab lawv tsev neeg.
www.muscle.ca
United States
Lub Pob Qij Ua Lub Pob Mus Ua Si
www.mdausa.org
Tus kws kho mob lub tswv yim
Raws li ib feem ntawm nws txoj hauv kev zoo, Passeportsanté.net caw koj kom pom qhov kev xav ntawm tus kws tshaj lij kev noj qab haus huv. Dr Jacques Allard, kws kho mob dav dav, muab nws qhov kev xav rau koj cov leeg khov :
Kuv cov lus qhia yog tsim los rau cov niam txiv uas txhawj xeeb txog kev loj hlob ntawm lawv tus menyuam. Yog tias koj tus menyuam muaj teeb meem taug kev, khiav, tawm hauv av lossis nce ntaiv, zoo li ua tsis taus pa lossis ntog ntau zaus, nws yog qhov zoo tshaj plaws mus ntsib kws kho mob, vim tias cov mob no tuaj yeem yog thawj cov tsos mob ntawm cov leeg nqaij dystrophy. . Thaum kuaj tau lawm, tshuaj noj thiab kev kho kom rov zoo tuaj yeem pab txo cov tsos mob thiab kev mob qeeb. Thaum kawg, kuv kuj pom zoo kom sab laj tus kws kho mob uas paub txog caj ces. Dr Jacques Allard MD FCMFC |