Xav paub ntxiv txog qhov cov leeg nqaij hlav, Passeportsanté.net muaj kev xaiv ntawm cov koom haum thiab tsoomfwv cov chaw cuam tshuam nrog cov ncauj lus ntawm cystic fibrosis. Koj yuav nrhiav tau nyob rau ntawd Lus Qhia ntxiv thiab tiv tauj cov zej zog lossis pab pawg sib txhawb tso cai rau koj kom kawm paub ntau ntxiv txog tus kabmob.

landmarks

Fabkis

Ua rau cystic fibrosis

Tsim nyob rau xyoo 1965, lub koom haum no tsom mus txhawb cov neeg mob thiab lawv tsev neeg nyob ib puag ncig 4 lub luag haujlwm: kho, saib xyuas, ua neej zoo dua, thiab txhawb kev paub. Nws kuj nquag txhawb kev tshawb fawb.

Gregory Lemarchal Association

Founded hauv 2007 tom qab kev tuag ntawm tus kws kos duab Grégory Lamarchal raug kev txom nyem los ntawm cystic fibrosis, lub koom haum no yog lub hom phiaj los txhim kho kev nplij siab thiab lub neej zoo ntawm cov neeg mob thiab txhawb kev paub txog kev pub khoom nruab nrog cev.

Association-gregorylemarchal.org

Canada

Canadian Cystic Fibrosis Foundation

Founded hauv 1960, lub hauv paus no tau tshawb fawb txog cystic fibrosis. Lub hauv paus lub hom phiaj yog muab cov peev txheej thiab cov ntaub ntawv los kho thiab tswj tus kab mob zoo dua. Cov ntawv qhia muaj nyob hauv online lossis los ntawm kev txiav txim, ua lus Askiv thiab Fabkis cystic fibrosis.ca

Cystic Fibrosis Quebec

Lub koom haum no aims pab cov neeg muaj cystic fibrosis hauv Quebec, nyob rau hauv kev pom zoo nrog Canadian Cystic Fibrosis Foundation.

aqfk.qc ua

Lub Xeev Pawg Neeg Saib Xyuas Cov Neeg Laus nrog Cystic Fibrosis

Tsim nyob rau xyoo 1985, Pawg Neeg Saib Xyuas Kev Noj Qab Haus Huv rau Cystic Fibrosis Adults (CPAFK) coj los ua ke ntau tshaj 500 Quebec cov neeg laus uas muaj cystic fibrosis. Qhov no yog pab pawg txhawb nqa uas tseem muaj lub hom phiaj los txhawb thiab tiv thaiv cov cai thiab kev nyiam ntawm cov neeg laus uas muaj cystic fibrosis hauv Quebec.

cpafk.qc ua

Quebec tsoom hwv txoj Kev Noj Qab Nyob Zoo

Txhawm rau kawm paub ntau ntxiv txog tshuaj: yuav noj lawv li cas, muaj qhov contraindications thiab muaj peev xwm cuam tshuam nrog, thiab lwm yam.

www.guidesante.gouv.qc.ca

Belgium

Lub koom haum Belgian rau Kev Tiv Thaiv Cystic Fibrosis

muco ua

Swiss

Swiss Society rau Cystic Fibrosis (SFCH)

cfch ua

United States

Cystic Fibrosis Foundation

www.cff.org